What Does United Mitochondrial Disease Foundation Do?

Total employees29
HeadquartersPittsburgh
Founded1996

The United Mitochondrial Disease Foundation (UMDF) is a non-profit organization dedicated to promoting research and education for the diagnosis, treatment, and cure of mitochondrial diseases. UMDF also provides crucial support to affected individuals and their families, striving to improve their quality of life. They fund research, host symposia, advocate for patients, and foster a community for those impacted by these complex disorders. Their work aims to empower patients, drive scientific discovery, and ultimately find cures for mitochondrial diseases.

Where Is United Mitochondrial Disease Foundation's Headquarters?

United Mitochondrial Disease Foundation officeUnited Mitochondrial Disease Foundation officeUnited Mitochondrial Disease Foundation officeUnited Mitochondrial Disease Foundation office
*Images sourced via web search. Rights belong to original owners

HQ Function

Serves as the central hub for UMDF's administrative, research funding, patient advocacy, and fundraising operations. Key decisions and strategic planning are managed from this location.

Notable Features:

The headquarters is a functional office space designed to support the foundation's mission-critical activities. It likely includes meeting spaces for collaboration and administrative offices.

Work Culture:

The work culture at UMDF headquarters is mission-driven, characterized by dedication, compassion, and collaboration. Employees are committed to supporting the mitochondrial disease community and advancing research.

HQ Significance:

The headquarters is significant as the operational core of UMDF, coordinating national and international efforts to combat mitochondrial disease and support affected families.

Values Reflected in HQ: The headquarters reflects UMDF's values of dedication to its cause, efficient stewardship of resources, and a focus on community support and scientific advancement.

Location:

While headquartered in the US, UMDF has a global impact by funding international research projects, collaborating with global mitochondrial disease organizations, and sharing educational resources worldwide. They participate in international conferences and work to raise global awareness of mitochondrial diseases. Their support network also assists families globally through online resources and connections.

Street Address:

8085 Saltsburg Road, Suite 201

City:

Pittsburgh

State/Province:

PA

Country:

USA

Where Else Does United Mitochondrial Disease Foundation Operate Around the World?

Nationwide Chapters, USA (Volunteer-led)

Address: N/A (Decentralized)

To provide localized support, raise awareness at the grassroots level, and facilitate community building for individuals and families affected by mitochondrial disease in various regions.

Buying Intent Signals for United Mitochondrial Disease Foundation

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Who's Leading United Mitochondrial Disease Foundation? Meet the Executive Team

As of April 2025, United Mitochondrial Disease Foundation' leadership includes:

Brian Harman - President & Chief Executive Officer
Margaret K. Scriptunas, CPA - Chief Financial Officer
Clifford Gorski, MS - Chief Program Officer
Beth Whitehouse - Chief Development Officer
Anne M. Simons, MEd - Director, Advocacy & Community Relations

Who's Investing in United Mitochondrial Disease Foundation?

United Mitochondrial Disease Foundation has been backed by several prominent investors over the years, including:

Individual Donors
Corporate Sponsors (e.g., pharmaceutical companies involved in mitochondrial disease research)
Foundation Grants
Community Fundraisers
Reneo Pharmaceuticals (Corporate Council Member example)
Stealth BioTherapeutics (Corporate Council Member example)

What Leadership Changes Has United Mitochondrial Disease Foundation Seen Recently?

Hire0
Exits0

As of late 2023/early 2024, there have been no major publicly announced executive hires or departures at the top leadership level within the United Mitochondrial Disease Foundation in the past 12 months. The executive team appears stable. Minor changes in director-level or managerial roles may occur but are not always broadly publicized.

What Technology (Tech Stack) Is Used byUnited Mitochondrial Disease Foundation?

Discover the tools United Mitochondrial Disease Foundation uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

United Mitochondrial Disease Foundation Email Formats and Examples

The United Mitochondrial Disease Foundation likely uses common professional email formats. The most probable format includes the first initial and last name, or first name and last name separated by a dot.

[first_initial][last]@umdf.org or [first].[last]@umdf.org

Format

bharman@umdf.org

Example

80%

Success rate

What's the Latest News About United Mitochondrial Disease Foundation?

UMDF WebsiteSeptember 22, 2023

UMDF Mourns Passing of Mito Pioneer, Dr. Salvatore DiMauro

The United Mitochondrial Disease Foundation (UMDF) announced the passing of Salvatore DiMauro, M.D., a pioneering figure in mitochondrial medicine. Dr. DiMauro was recognized for his significant contributions to the field and his long-standing support for UMDF's mission....more

UMDF WebsiteOctober 10, 2023

UMDF Announces 2023 Research Grant Awards Totaling Over $1 Million

UMDF awarded over $1 million in research grants to investigators worldwide focused on finding treatments and cures for mitochondrial disease. This funding supports innovative projects aimed at understanding disease mechanisms and developing new therapies....more

UMDF Symposium WebsiteJune 28, 2023

UMDF Hosts Annual Mitochondrial Medicine Symposium

The United Mitochondrial Disease Foundation successfully hosted its annual Mitochondrial Medicine Symposium, bringing together clinicians, researchers, patients, and families to share the latest advancements in mitochondrial medicine and foster collaboration....more

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