Parent Project Muscular Dystrophy (PPMD) is the largest and most comprehensive non-profit organization in the United States focused entirely on Duchenne muscular dystrophy. Founded in 1994 by Pat Furlong and a group of parents and grandparents, PPMD is dedicated to ending Duchenne by funding research, raising awareness, promoting optimal care, and advocating for the Duchenne community. Their work encompasses a broad range of initiatives, including supporting innovative therapies, improving clinical trial processes, and providing resources and support for families affected by Duchenne.
Serves as the central hub for PPMD's operations, including coordinating research funding, leading advocacy efforts at a national level, developing educational programs, and managing community support initiatives.
Located in the heart of the nation's capital, providing strategic access to policymakers and regulatory agencies. The office is designed to be a collaborative space for staff and visiting community members.
Mission-driven and passionate, with a strong sense of community and dedication to the families affected by Duchenne. The environment is collaborative, empathetic, and focused on making a tangible impact.
The Washington D.C. location underscores PPMD's commitment to advocacy and influencing public policy related to Duchenne research, drug approval, and patient care.
While headquartered in the U.S., Parent Project Muscular Dystrophy has a significant global impact. PPMD collaborates with international researchers, patient advocacy groups, and pharmaceutical companies worldwide to accelerate the development of Duchenne therapies. They share best practices in care, support global clinical trials, and advocate for the Duchenne community on an international stage, fostering a global fight against the disease.
1012 14th Street NW, Suite 500
Washington
D.C.
USA
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As of April 2025, Parent Project Muscular Dystrophy' leadership includes:
Parent Project Muscular Dystrophy has been backed by several prominent investors over the years, including:
Parent Project Muscular Dystrophy maintains a relatively stable core leadership team dedicated to its long-term mission. Specific executive new hires or exits are not frequently publicized unless they represent major organizational shifts. Any such changes are typically announced via official press releases on their website.
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Parent Project Muscular Dystrophy primarily uses a first name-based email format for its staff (e.g., john@parentprojectmd.org). This format facilitates direct communication with team members.
[first]@parentprojectmd.org
Format
pat@parentprojectmd.org
Example
85%
Success rate
Parent Project Muscular Dystrophy • June 4, 2024
PPMD and Duchenne UK renewed their partnership to advance gene therapy development for Duchenne muscular dystrophy, focusing on safety and efficacy through collaborative research and funding....more
Parent Project Muscular Dystrophy • May 20, 2024
PPMD awarded a $225,000 grant to Dr. Yetrib Hathout at Binghamton University to support research into novel biomarkers for Duchenne, aiming to improve diagnostic tools and treatment monitoring....more
Parent Project Muscular Dystrophy • February 29, 2024
PPMD highlighted key achievements and ongoing efforts within the Duchenne community in observance of Rare Disease Day, emphasizing progress in research, advocacy, and care....more
Parent Project Muscular Dystrophy • October 26, 2023
PPMD celebrated the FDA's approval of Agamree (vamorolone) for treating individuals with Duchenne muscular dystrophy, marking a significant advancement in therapeutic options....more
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