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Parent Project Muscular Dystrophy's Overview

Total employees53
HeadquartersWashington
Founded1994

Parent Project Muscular Dystrophy (PPMD) is the largest and most comprehensive non-profit organization in the United States focused entirely on Duchenne muscular dystrophy. Founded in 1994 by Pat Furlong and a group of parents and grandparents, PPMD is dedicated to ending Duchenne by funding research, raising awareness, promoting optimal care, and advocating for the Duchenne community. Their work encompasses a broad range of initiatives, including supporting innovative therapies, improving clinical trial processes, and providing resources and support for families affected by Duchenne.

Where is Parent Project Muscular Dystrophy's Headquarters?

HQ Function

Serves as the central hub for PPMD's operations, including coordinating research funding, leading advocacy efforts at a national level, developing educational programs, and managing community support initiatives.

Notable Features:

Located in the heart of the nation's capital, providing strategic access to policymakers and regulatory agencies. The office is designed to be a collaborative space for staff and visiting community members.

Work Culture:

Mission-driven and passionate, with a strong sense of community and dedication to the families affected by Duchenne. The environment is collaborative, empathetic, and focused on making a tangible impact.

HQ Significance:

The Washington D.C. location underscores PPMD's commitment to advocacy and influencing public policy related to Duchenne research, drug approval, and patient care.

Values Reflected in HQ: The headquarters embodies PPMD's values of dedication, collaboration, and relentless pursuit of treatments and a cure for Duchenne, strategically positioned to maximize its advocacy impact.

Location:

While headquartered in the U.S., Parent Project Muscular Dystrophy has a significant global impact. PPMD collaborates with international researchers, patient advocacy groups, and pharmaceutical companies worldwide to accelerate the development of Duchenne therapies. They share best practices in care, support global clinical trials, and advocate for the Duchenne community on an international stage, fostering a global fight against the disease.

Street Address:

1012 14th Street NW, Suite 500

City:

Washington

State/Province:

D.C.

Country:

USA

Parent Project Muscular Dystrophy's Global Presence

Buying Intent Signals for Parent Project Muscular Dystrophy

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of Parent Project Muscular Dystrophy

As of April 2025, Parent Project Muscular Dystrophy' leadership includes:

Pat Furlong - Founding President & CEO
Abby Bronson - Chief Strategy Officer
Ryan Fischer - Chief Advocacy Officer
Rachel Schrader - Chief Program Officer
Eric Camino, PhD - Vice President, Research & Clinical Innovation

Investors of Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy has been backed by several prominent investors over the years, including:

Sarepta Therapeutics
Pfizer Inc.
PTC Therapeutics
Catalyst Pharmaceuticals
Numerous Individual Donors and Family Foundations
Government Grants (e.g., NIH, FDA)

Executive New Hires/Exits in the Last 12 Months

Hire0
Exits0

Parent Project Muscular Dystrophy maintains a relatively stable core leadership team dedicated to its long-term mission. Specific executive new hires or exits are not frequently publicized unless they represent major organizational shifts. Any such changes are typically announced via official press releases on their website.

Technology (Tech Stack) used by Parent Project Muscular Dystrophy

Discover the tools Parent Project Muscular Dystrophy uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

Parent Project Muscular Dystrophy Email Formats and Examples

Parent Project Muscular Dystrophy primarily uses a first name-based email format for its staff (e.g., john@parentprojectmd.org). This format facilitates direct communication with team members.

[first]@parentprojectmd.org

Format

pat@parentprojectmd.org

Example

85%

Success rate

News and media

Parent Project Muscular DystrophyJune 4, 2024

PPMD & Duchenne UK Announce Renewal of Gene Therapy Initiative Partnership

PPMD and Duchenne UK renewed their partnership to advance gene therapy development for Duchenne muscular dystrophy, focusing on safety and efficacy through collaborative research and funding....more

Parent Project Muscular DystrophyMay 20, 2024

PPMD Awards $225,000 Grant to Dr. Yetrib Hathout for Biomarker Research

PPMD awarded a $225,000 grant to Dr. Yetrib Hathout at Binghamton University to support research into novel biomarkers for Duchenne, aiming to improve diagnostic tools and treatment monitoring....more

Parent Project Muscular DystrophyFebruary 29, 2024

PPMD Celebrates Duchenne Community Accomplishments on Rare Disease Day 2024

PPMD highlighted key achievements and ongoing efforts within the Duchenne community in observance of Rare Disease Day, emphasizing progress in research, advocacy, and care....more

Parent Project Muscular DystrophyOctober 26, 2023

PPMD Commends FDA Approval of Agamree (vamorolone) for Duchenne Muscular Dystrophy

PPMD celebrated the FDA's approval of Agamree (vamorolone) for treating individuals with Duchenne muscular dystrophy, marking a significant advancement in therapeutic options....more

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