The Hemophilia Federation of America (HFA) is a U.S. national 501(c)(3) nonprofit organization that assists, educates, and advocates for individuals and families affected by hemophilia, von Willebrand disease, and other inheritable bleeding disorders. HFA provides a wide range of programs and services, including patient assistance, educational resources, advocacy at federal and state levels, and support for research. Their mission is to improve the quality of life for all people with bleeding disorders by addressing their needs and concerns through direct services, education, and advocacy.
Serves as the central administrative, advocacy, program development, and operational hub for the organization's national efforts supporting the bleeding disorders community.
Strategically located in the nation's capital to enhance advocacy and policy work. The office provides a base for national operations and stakeholder engagement.
Mission-driven, passionate, and collaborative, with a strong focus on serving the needs of the bleeding disorders community. Employees are dedicated to advocacy, education, and patient support, fostering an environment of empathy and action.
The headquarters is pivotal for HFA's national advocacy initiatives, influencing policy, and coordinating nationwide programs and services that directly impact individuals and families affected by bleeding disorders.
While primarily focused on serving the bleeding disorders community within the United States, the Hemophilia Federation of America engages with the global community through collaboration with international bleeding disorder organizations, sharing best practices, and participating in global advocacy efforts to improve care and support worldwide. They may also support international initiatives or share educational resources when applicable, but do not maintain physical international offices.
820 First Street NE, LL Suite 30
Washington
D.C.
USA
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As of April 2025, Hemophilia Federation of America' leadership includes:
Hemophilia Federation of America has been backed by several prominent investors over the years, including:
No major widely publicized executive hires or departures at the C-suite level have been identified for the Hemophilia Federation of America within the strict last 12-month period (approx. mid-2023 to mid-2024). The current senior leadership team, headed by President & CEO Sharon L. Mathis who commenced her role in January 2023, appears to be stable.
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Hemophilia Federation of America likely uses a standard professional email format for its staff, typically combining parts of an employee's name with the organization's domain @hemophiliafed.org. Common formats for non-profits include [firstinitial][lastname] or [firstname].[lastname]. Specific formats are not publicly advertised.
[firstinitial][lastname]@hemophiliafed.org (e.g., jdoe@hemophiliafed.org) or [firstname].[lastname]@hemophiliafed.org (e.g., jane.doe@hemophiliafed.org)
Format
smathis@hemophiliafed.org (speculative example based on common formats)
Example
70%
Success rate
Hemophilia Federation of America Website • May 16, 2024
The Hemophilia Federation of America (HFA) praised the bipartisan introduction of the Hemophilia SNF Access Act, S. 4312, legislation aimed at ensuring fair Medicare reimbursement for clotting factor and services provided in skilled nursing facilities (SNFs) for patients with bleeding disorders....more
Hemophilia Federation of America Website • April 24, 2024
HFA announced the recipients of its 2024 Helping Hands: Research & Gene Therapy Grant, awarding a total of $400,000 to support innovative research projects aimed at improving the lives of individuals with bleeding disorders, including advancements in gene therapy....more
Hemophilia Federation of America Website • April 15, 2024
HFA shared highlights from its annual Symposium held in Indianapolis, emphasizing the event's success in bringing together the bleeding disorders community for education, support, and networking. The event featured numerous sessions, workshops, and activities for patients, families, and healthcare professionals....more
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