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Hemophilia Federation of America's Overview

Total employees39
HeadquartersWashington
Founded1994

The Hemophilia Federation of America (HFA) is a U.S. national 501(c)(3) nonprofit organization that assists, educates, and advocates for individuals and families affected by hemophilia, von Willebrand disease, and other inheritable bleeding disorders. HFA provides a wide range of programs and services, including patient assistance, educational resources, advocacy at federal and state levels, and support for research. Their mission is to improve the quality of life for all people with bleeding disorders by addressing their needs and concerns through direct services, education, and advocacy.

Where is Hemophilia Federation of America's Headquarters?

HQ Function

Serves as the central administrative, advocacy, program development, and operational hub for the organization's national efforts supporting the bleeding disorders community.

Notable Features:

Strategically located in the nation's capital to enhance advocacy and policy work. The office provides a base for national operations and stakeholder engagement.

Work Culture:

Mission-driven, passionate, and collaborative, with a strong focus on serving the needs of the bleeding disorders community. Employees are dedicated to advocacy, education, and patient support, fostering an environment of empathy and action.

HQ Significance:

The headquarters is pivotal for HFA's national advocacy initiatives, influencing policy, and coordinating nationwide programs and services that directly impact individuals and families affected by bleeding disorders.

Values Reflected in HQ: The headquarters' operations and location reflect HFA's core values of advocacy, community support, education, integrity, and empowerment for individuals with bleeding disorders.

Location:

While primarily focused on serving the bleeding disorders community within the United States, the Hemophilia Federation of America engages with the global community through collaboration with international bleeding disorder organizations, sharing best practices, and participating in global advocacy efforts to improve care and support worldwide. They may also support international initiatives or share educational resources when applicable, but do not maintain physical international offices.

Street Address:

820 First Street NE, LL Suite 30

City:

Washington

State/Province:

D.C.

Country:

USA

Hemophilia Federation of America's Global Presence

Buying Intent Signals for Hemophilia Federation of America

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of Hemophilia Federation of America

As of April 2025, Hemophilia Federation of America' leadership includes:

Sharon L. Mathis, CAE - President & CEO
Heather Case - Vice President, Finance & Operations
Lori Long, PhD, LCSW - Vice President, Education
Kimberly Ramseur, CMP - Vice President, Development
Sarah Shinkman - Vice President, Public Policy & Advocacy

Investors of Hemophilia Federation of America

Hemophilia Federation of America has been backed by several prominent investors over the years, including:

Individual Donors
Corporate Partners (e.g., Bayer, CSL Behring, Genentech, Pfizer, Sanofi, Takeda)
Foundation Grants
Program Service Revenue
Membership Dues from member organizations

Executive New Hires/Exits in the Last 12 Months

Hire0
Exits0

No major widely publicized executive hires or departures at the C-suite level have been identified for the Hemophilia Federation of America within the strict last 12-month period (approx. mid-2023 to mid-2024). The current senior leadership team, headed by President & CEO Sharon L. Mathis who commenced her role in January 2023, appears to be stable.

Technology (Tech Stack) used by Hemophilia Federation of America

Discover the tools Hemophilia Federation of America uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

Hemophilia Federation of America Email Formats and Examples

Hemophilia Federation of America likely uses a standard professional email format for its staff, typically combining parts of an employee's name with the organization's domain @hemophiliafed.org. Common formats for non-profits include [firstinitial][lastname] or [firstname].[lastname]. Specific formats are not publicly advertised.

[firstinitial][lastname]@hemophiliafed.org (e.g., jdoe@hemophiliafed.org) or [firstname].[lastname]@hemophiliafed.org (e.g., jane.doe@hemophiliafed.org)

Format

smathis@hemophiliafed.org (speculative example based on common formats)

Example

70%

Success rate

News and media

Hemophilia Federation of America WebsiteMay 16, 2024

HFA Commends Introduction of the Hemophilia SNF Access Act

The Hemophilia Federation of America (HFA) praised the bipartisan introduction of the Hemophilia SNF Access Act, S. 4312, legislation aimed at ensuring fair Medicare reimbursement for clotting factor and services provided in skilled nursing facilities (SNFs) for patients with bleeding disorders....more

Hemophilia Federation of America WebsiteApril 24, 2024

HFA Awards $400,000 in Research Grants Through 'Helping Hands: Research & Gene Therapy Grant'

HFA announced the recipients of its 2024 Helping Hands: Research & Gene Therapy Grant, awarding a total of $400,000 to support innovative research projects aimed at improving the lives of individuals with bleeding disorders, including advancements in gene therapy....more

Hemophilia Federation of America WebsiteApril 15, 2024

HFA Symposium 2024: A Whirlwind of Connection, Education, and Fun!

HFA shared highlights from its annual Symposium held in Indianapolis, emphasizing the event's success in bringing together the bleeding disorders community for education, support, and networking. The event featured numerous sessions, workshops, and activities for patients, families, and healthcare professionals....more

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