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Genetic Alliance is a prominent non-profit organization dedicated to transforming health by actively engaging individuals, families, and diverse communities. They spearhead initiatives to advance genomic research, champion responsible and equitable data sharing practices, and empower individuals with accessible tools and comprehensive information for informed health decision-making. Their extensive network unites advocacy organizations, researchers, clinicians, and policymakers to accelerate scientific discoveries and enhance health outcomes globally.
Serves as the central administrative and operational hub, coordinating national and international advocacy efforts, research initiatives, policy work, and network management.
The headquarters provides a functional office environment conducive to collaboration, strategic planning, and daily operations for the non-profit's staff. Specific architectural highlights are not a primary feature.
Characterized by a passionate, mission-driven, and collaborative atmosphere. The culture emphasizes patient advocacy, ethical considerations in science, innovation, and a commitment to health equity.
The Falls Church headquarters is pivotal for orchestrating Genetic Alliance's wide-ranging programs, facilitating communication within its vast network, and serving as a base for its leadership and core operations.
Genetic Alliance's influence is global, supporting functions such as international policy development, fostering worldwide research collaborations (e.g., through platforms like PEER), and connecting a diverse network of over 10,000 organizations across numerous countries. They champion global standards for ethical research, data sharing, and patient empowerment, thereby impacting health advancements for individuals and families affected by genetic conditions worldwide.
7245 Arlington Blvd, Suite 202
Falls Church
VA
USA
No additional office locations available.
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As of April 2025, Genetic Alliance' leadership includes:
Genetic Alliance has been backed by several prominent investors over the years, including:
Based on publicly available information and recent news releases, there have been no major executive hires or exits announced by Genetic Alliance in the last 12 months, suggesting stability in the core leadership team.
Discover the tools Genetic Alliance uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.
Genetic Alliance's primary email format appears to be a common professional structure. Based on publicly available information for key personnel, the most probable format is [first_initial][last]@[domain].
[first_initial][last]@geneticalliance.org
Format
sterry@geneticalliance.org
Example
85%
Success rate
Genetic Alliance Official Website • February 29, 2024
Genetic Alliance partnered with the White House Office of Science and Technology Policy (OSTP) to issue a Request for Information (RFI). This initiative seeks public input to enhance informed consent policies and practices, especially regarding data sharing and individual privacy in research and healthcare....more
PR Newswire • January 15, 2024
Sharon Terry, President & CEO of Genetic Alliance, was honored with the Luminary Award at the Precision Medicine World Conference (PMWC) 2024. The award recognizes her transformative contributions to precision medicine and her long-standing dedication to patient advocacy....more
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