What Does Genetic Alliance Do?

Total employees30
HeadquartersFalls Church
Founded1986

Genetic Alliance is a prominent non-profit organization dedicated to transforming health by actively engaging individuals, families, and diverse communities. They spearhead initiatives to advance genomic research, champion responsible and equitable data sharing practices, and empower individuals with accessible tools and comprehensive information for informed health decision-making. Their extensive network unites advocacy organizations, researchers, clinicians, and policymakers to accelerate scientific discoveries and enhance health outcomes globally.

Where Is Genetic Alliance's Headquarters?

HQ Function

Serves as the central administrative and operational hub, coordinating national and international advocacy efforts, research initiatives, policy work, and network management.

Notable Features:

The headquarters provides a functional office environment conducive to collaboration, strategic planning, and daily operations for the non-profit's staff. Specific architectural highlights are not a primary feature.

Work Culture:

Characterized by a passionate, mission-driven, and collaborative atmosphere. The culture emphasizes patient advocacy, ethical considerations in science, innovation, and a commitment to health equity.

HQ Significance:

The Falls Church headquarters is pivotal for orchestrating Genetic Alliance's wide-ranging programs, facilitating communication within its vast network, and serving as a base for its leadership and core operations.

Values Reflected in HQ: The operational setup and activities at the headquarters reflect Genetic Alliance's core values of collaboration, patient-centricity, integrity, innovation, and community engagement in health.

Location:

Genetic Alliance's influence is global, supporting functions such as international policy development, fostering worldwide research collaborations (e.g., through platforms like PEER), and connecting a diverse network of over 10,000 organizations across numerous countries. They champion global standards for ethical research, data sharing, and patient empowerment, thereby impacting health advancements for individuals and families affected by genetic conditions worldwide.

Street Address:

7245 Arlington Blvd, Suite 202

City:

Falls Church

State/Province:

VA

Country:

USA

Where Else Does Genetic Alliance Operate Around the World?

No additional office locations available.

Buying Intent Signals for Genetic Alliance

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Who's Leading Genetic Alliance? Meet the Executive Team

As of April 2025, Genetic Alliance' leadership includes:

Sharon F. Terry - President & CEO
Natasha Bonhomme - Chief Strategy Officer
James O'Leary - Chief Innovation Officer
Megan O’Boyle - Director of Engagement and Operations

Who's Investing in Genetic Alliance?

Genetic Alliance has been backed by several prominent investors over the years, including:

National Institutes of Health (NIH)
Patient-Centered Outcomes Research Institute (PCORI)
Robert Wood Johnson Foundation
The John A. Hartford Foundation
Individual Philanthropists
Corporate Sponsors

What Leadership Changes Has Genetic Alliance Seen Recently?

Hire0
Exits0

Based on publicly available information and recent news releases, there have been no major executive hires or exits announced by Genetic Alliance in the last 12 months, suggesting stability in the core leadership team.

What Technology (Tech Stack) Is Used byGenetic Alliance?

Discover the tools Genetic Alliance uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

Genetic Alliance Email Formats and Examples

Genetic Alliance's primary email format appears to be a common professional structure. Based on publicly available information for key personnel, the most probable format is [first_initial][last]@[domain].

[first_initial][last]@geneticalliance.org

Format

sterry@geneticalliance.org

Example

85%

Success rate

What's the Latest News About Genetic Alliance?

Genetic Alliance Official WebsiteFebruary 29, 2024

Genetic Alliance and White House OSTP Release RFI on Strengthening Informed Consent

Genetic Alliance partnered with the White House Office of Science and Technology Policy (OSTP) to issue a Request for Information (RFI). This initiative seeks public input to enhance informed consent policies and practices, especially regarding data sharing and individual privacy in research and healthcare....more

PR NewswireJanuary 15, 2024

Genetic Alliance CEO Sharon Terry Honored with PMWC Luminary Award

Sharon Terry, President & CEO of Genetic Alliance, was honored with the Luminary Award at the Precision Medicine World Conference (PMWC) 2024. The award recognizes her transformative contributions to precision medicine and her long-standing dedication to patient advocacy....more

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