highperformr logo

Cystic Fibrosis Foundation's Overview

Total employees1228
HeadquartersBethesda
Founded1955

The Cystic Fibrosis Foundation (CFF) is a leading non-profit organization dedicated to curing cystic fibrosis (CF) and providing all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. They have been instrumental in advancing CF research and treatment, significantly extending the lifespan and improving the quality of life for people with CF. The Foundation operates on a venture philanthropy model, investing donor funds into research programs and biotechnology companies to accelerate the development of new therapies.

Where is Cystic Fibrosis Foundation's Headquarters?

HQ Function

The headquarters serves as the central hub for strategic planning, research funding allocation, national advocacy efforts, patient support program coordination, and administrative operations for the entire organization.

Notable Features:

Modern office facilities designed to support a collaborative and mission-focused workforce. Its location in the Washington D.C. metropolitan area provides proximity to key governmental health organizations and research institutions.

Work Culture:

A highly mission-driven and passionate work environment. Employees are deeply committed to the cause of finding a cure for CF and supporting the CF community. The culture emphasizes collaboration, innovation, and patient-centricity.

HQ Significance:

The Bethesda headquarters is pivotal for orchestrating the Foundation's national and international efforts, managing substantial research investments, and driving policy changes that benefit individuals with cystic fibrosis.

Values Reflected in HQ: The headquarters reflects the Foundation's commitment to excellence, urgency in research, and dedication to the CF community through its efficient and focused operational setup.

Location:

While the Cystic Fibrosis Foundation is primarily U.S.-based with its operational headquarters and chapter network within the United States, its impact is global. The CFF funds research internationally, collaborates with global CF organizations, researchers, and clinicians, and participates in international consortia to share knowledge, advance scientific understanding, and accelerate the development of therapies for cystic fibrosis worldwide. They support a global network of care centers and clinical trial sites.

Street Address:

4550 Montgomery Avenue, Suite 1100 N

City:

Bethesda

State/Province:

Maryland

Country:

USA

Cystic Fibrosis Foundation's Global Presence

Nationwide Chapters, USA (e.g., Chicago, IL; Los Angeles, CA; New York, NY)

Address: Varies by chapter (numerous local offices across the United States). Example: Greater Illinois Chapter, 150 N. Michigan Ave., Suite 1550, Chicago, IL 60601.

To implement the Foundation's mission at a local level, tailoring national programs to meet community needs, building local partnerships, and fostering a supportive network for individuals and families affected by CF.

Buying Intent Signals for Cystic Fibrosis Foundation

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of Cystic Fibrosis Foundation

As of April 2025, Cystic Fibrosis Foundation' leadership includes:

Michael Boyle, M.D. - President and Chief Executive Officer
William R. Skach, M.D. - Executive Vice President and Chief Scientific Officer
Marc Ginsky - Executive Vice President and Chief Operating Officer
JP Clancy, M.D. - Senior Vice President, Clinical Research
Mary Dwight - Chief Policy and Advocacy Officer and Head of Patient Affairs

Investors of Cystic Fibrosis Foundation

Cystic Fibrosis Foundation has been backed by several prominent investors over the years, including:

The Cystic Fibrosis Foundation is a non-profit, donor-supported organization. It does not have 'investors' in the traditional sense. Funding comes from individual donations, corporate sponsorships, foundation grants, and community fundraising events. Vertex Pharmaceuticals is a notable corporate collaborator in drug development.

Executive New Hires/Exits in the Last 12 Months

Hire0
Exits0

Based on publicly available information, there have been no major high-profile executive leadership (President/CEO, EVP) changes publicly announced in the last 12 months. The leadership team has shown stability.

Technology (Tech Stack) used by Cystic Fibrosis Foundation

Discover the tools Cystic Fibrosis Foundation uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

Cystic Fibrosis Foundation Email Formats and Examples

The Cystic Fibrosis Foundation likely uses standard professional email formats, commonly incorporating the employee's first initial and last name, or full name.

[first_initial][last]@cff.org

Format

mboyle@cff.org

Example

80%

Success rate

News and media

cff.orgJune 4, 2024

Cystic Fibrosis Foundation Statement on FDA Advisory Committee Meeting on Vertex Triple Combination Therapy for Children Ages 2-5

The Cystic Fibrosis Foundation issued a statement regarding the FDA advisory committee meeting discussing Vertex Pharmaceuticals' triple combination therapy (elexacaftor/tezacaftor/ivacaftor) for children ages 2-5 with certain CF mutations. The Foundation highlighted the urgent need for approved therapies for young children....more

cff.orgMay 21, 2024

Cystic Fibrosis Foundation Announces $9.5 Million Investment in Therapeutic Development Awards

The Cystic Fibrosis Foundation announced a $9.5 million investment through its Therapeutic Development Awards program to support seven new research projects aimed at developing novel treatments for cystic fibrosis, focusing on areas such as infection, inflammation, and addressing the underlying cause of CF for all individuals with the disease....more

cff.orgFebruary 27, 2024

Cystic Fibrosis Foundation Launches $15 Million Initiative to Develop Treatments for Rare CF Mutations

The CFF launched a $15 million initiative, 'Advancing Research for Rare CF Mutations,' to accelerate the development of treatments for individuals with rare cystic fibrosis mutations who do not yet have highly effective modulator therapies....more

Highperformr’s free tools for company research

Explore Employees by Region or Country

See where a company’s workforce is located, by country or region.

View Funding Details

View past and recent funding rounds with amounts and investors.

Understand Revenue Insights

Understand company revenue estimates and financial scale.

Track Active Job Openings

Track active roles and hiring trends to spot growth signals.

Review Product and Offerings

Discover what a company offers—products, platforms, and solutions.

Get SIC or NAICS Codes

Get the company’s official SIC and NAICS classifications.

Analyze Website Traffic Trends

Analyze visitor volume, engagement, and top traffic sources.

Discover Social Profiles and Engagement

Explore LinkedIn, Twitter, and other active social profiles.

Identify Top Competitors

Identify top competitors based on similar business traits.

Research and Discover Companies with Highperformr — Smarter, Faster

Explore companies in depth — from the tech they use to recent funding, hiring trends, and buyer signals — all in one powerful view.

Highperformr AI helps you surface the right accounts and enrich your CRM with verified company and contact insights, so your teams can prioritize and engage faster.

  • Track intent signals to find buyers who are actively in-market
  • Enrich contacts and companies instantly, no need to switch tools
  • Automate workflows to stay ahead of every change
  • Connect your CRM & tools for seamless data sync and activation

Thousands of companies, including Cystic Fibrosis Foundation, are just a search away.