The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person affected by cutaneous lymphoma. Their mission involves promoting awareness and education, advancing patient care, and fostering research. They provide comprehensive resources for patients, caregivers, and healthcare professionals, including information on diagnosis, treatment options, and clinical trials. The Foundation also advocates for the cutaneous lymphoma community, works to improve quality of life, and strives to ultimately find cures for these rare cancers.
Central hub for national operations, including patient support programs, educational initiatives, research funding, advocacy efforts, and organizational administration.
Operates efficiently, likely through a combination of a modest administrative office and remote workforce, to maximize resource allocation towards its mission. Physical infrastructure is secondary to program delivery and impact.
A mission-driven, compassionate, and collaborative environment, fostering a supportive atmosphere for staff, volunteers, and the patient community. Emphasizes dedication to improving the lives of those affected by cutaneous lymphoma through empathy and expertise.
Serves as the organizational core, enabling the Foundation to coordinate nationwide support services, disseminate vital information, manage research grants, and drive advancements for a rare group of cancers affecting patients across the country.
While the Cutaneous Lymphoma Foundation is primarily focused on serving patients and advancing research within the United States, its comprehensive online resources, educational materials, and research findings are accessible globally. The Foundation collaborates with international experts and organizations to share knowledge and best practices, contributing to the global understanding and treatment of cutaneous lymphomas. Direct patient support services are generally concentrated within the U.S.
P.O. Box 374 (Primary Mailing Address)
Birmingham
MI
USA
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As of April 2025, Cutaneous Lymphoma Foundation' leadership includes:
Cutaneous Lymphoma Foundation has been backed by several prominent investors over the years, including:
As of early 2024, no major executive hires or exits for the top leadership positions (such as CEO) at the Cutaneous Lymphoma Foundation have been publicly announced in the last 12 months. The leadership team appears stable.
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Email addresses for the Cutaneous Lymphoma Foundation staff typically use a standard professional format, commonly combining the employee's first initial and last name with the foundation's domain.
[first_initial][last]@clfoundation.org
Format
sthornton@clfoundation.org
Example
80%
Success rate
clfoundation.org • March 26, 2024
The Cutaneous Lymphoma Foundation announced it will host a 2-Day Cutaneous Lymphoma Patient Education Forum in Chicago, Illinois, on June 7-8, 2024, offering in-person learning and networking opportunities for patients, caregivers, and families impacted by cutaneous lymphoma....more
clfoundation.org • February 21, 2024
The Foundation launched a new educational resource designed to help patients better understand Folliculotropic Mycosis Fungoides (FMF), a rare and often challenging variant of cutaneous T-cell lymphoma, providing clarity on diagnosis and treatment pathways....more
clfoundation.org • December 7, 2023
The Cutaneous Lymphoma Foundation received a Palliative Care Research Cooperative (PCORI) Engagement Award. This funding will support a project focused on building capacity for patient-centered outcomes research within the cutaneous lymphoma community....more
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