Cure SMA is a national non-profit organization dedicated to the treatment and cure of spinal muscular Atrophy (SMA) — a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. Cure SMA funds and directs comprehensive research that has led to approved treatments, provides a multitude of support programs for families and individuals affected by SMA, and advocates for policies that benefit the SMA community. Their vision is a world where everyone with SMA has the resources and support they need to live full, engaged lives.
Serves as the central hub for Cure SMA's national operations, including strategic planning, research program administration, fundraising, patient and family support services coordination, and advocacy leadership.
The headquarters is likely a functional office space designed to facilitate collaboration among its staff and support its mission-driven activities, rather than notable for specific architectural features.
The work culture at Cure SMA is mission-focused, characterized by passionate individuals dedicated to making a difference in the lives of those affected by SMA. It likely fosters collaboration, empathy, and a strong sense of community.
The headquarters is significant as the command center for the largest SMA-focused organization in the U.S., driving progress in research, care, and support for the SMA community nationwide.
While Cure SMA's primary operations and direct support services are focused within the United States, it plays a significant role in the global SMA community. This includes funding international research collaborations, sharing best practices with SMA organizations in other countries, and advocating for global access to treatments and care. They often participate in and support international conferences and initiatives related to spinal muscular atrophy.
925 Busse Road
Elk Grove Village
IL
USA
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As of April 2025, Cure SMA' leadership includes:
Cure SMA has been backed by several prominent investors over the years, including:
No major publicly announced executive hires or exits at Cure SMA have been identified in the last 12 months. The leadership team appears stable.
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Cure SMA likely utilizes common professional email formats for its staff. Based on publicly available information and standard organizational practices, the most probable format combines elements of an employee's name with the domain curesma.org.
[first_initial][last_name]@curesma.org
Format
khobby@curesma.org
Example
75%
Success rate
Cure SMA • June 7, 2024
Cure SMA is calling on advocates to urge their U.S. Representatives to sign a bipartisan letter supporting the reauthorization of vital newborn screening programs. This initiative aims to ensure early detection and intervention for conditions like SMA....more
Muscular Dystrophy News • May 29, 2024
Cure SMA has awarded $580,000 in grants to support three new research projects focused on enhancing clinical care for individuals with spinal muscular atrophy (SMA). The funded studies will investigate areas such as patient-reported outcomes, scoliosis, and sleep-disordered breathing in SMA....more
Cure SMA • February 20, 2024
Cure SMA has launched the SMA Clinical Trial Readiness Program, aimed at accelerating the development of new treatments for SMA by better preparing the patient community and clinical sites for participation in research studies....more
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