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CureDuchenne's Overview

Total employees34
HeadquartersNewport Beach
Founded2003

CureDuchenne is a leading national non-profit organization passionately committed to finding a cure for Duchenne muscular dystrophy, a fatal genetic disease. Founded by parents of a son with Duchenne, the organization focuses on three core pillars: funding groundbreaking research to accelerate the development of effective treatments, improving care for individuals living with Duchenne through education and advocacy, and empowering the Duchenne community with resources and support. They strive to make a tangible difference in the lives of those affected by Duchenne, driving scientific breakthroughs and fostering hope.

Where is CureDuchenne's Headquarters?

HQ Function

Serves as the primary administrative, research coordination, fundraising, and program management center for the organization.

Notable Features:

Located in a modern office building in a prominent business district, facilitating accessibility for partners and collaborators. The focus is on a functional and collaborative workspace.

Work Culture:

A mission-driven, passionate, and collaborative environment. Employees are dedicated to the cause of finding a cure for Duchenne, fostering a sense of urgency and commitment. The culture emphasizes teamwork, innovation in research funding, and strong community engagement.

HQ Significance:

The headquarters is vital for strategic planning, managing multi-million dollar research investments, coordinating with scientists and clinicians globally, and leading advocacy efforts to impact Duchenne care and policy.

Values Reflected in HQ: The professional and accessible office space reflects CureDuchenne's commitment to excellence, efficiency, and strong partnerships in its mission to cure Duchenne.

Location:

While headquartered in the USA, CureDuchenne has a significant global impact. It funds and collaborates with researchers, institutions, and pharmaceutical companies worldwide to advance Duchenne treatments. The organization supports international patient advocacy efforts, shares best practices in care globally, and works to ensure that breakthroughs reach the Duchenne community across different countries. Their presence is defined by strategic partnerships and program reach rather than numerous physical international offices.

Street Address:

1400 Newport Center Drive, Suite 300

City:

Newport Beach

State/Province:

CA

Country:

USA

CureDuchenne's Global Presence

Buying Intent Signals for CureDuchenne

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of CureDuchenne

As of April 2025, CureDuchenne' leadership includes:

Debra Miller - Founder & Chief Executive Officer
Lianna Angel - Chief Operating Officer
Laura Hixson - Chief Financial Officer
Michael Kelly, PhD - Chief Scientific Officer
Jennifer Wallace - Chief Program Officer

Investors of CureDuchenne

CureDuchenne has been backed by several prominent investors over the years, including:

Pharmaceutical Industry Collaborators (e.g., Sarepta Therapeutics, Pfizer)
Biotechnology Companies
Private Foundations
Individual Philanthropists
Community Fundraising Initiatives

Executive New Hires/Exits in the Last 12 Months

Hire3
Exits0

CureDuchenne solidified its executive team with key appointments and promotions primarily in early 2023, establishing a strong C-suite. No major C-suite departures have been publicly announced in the immediate last 12-18 months, indicating team stability and focus on its mission.

New Appointments:

Lianna Angel, Lianna Angel joined CureDuchenne as Chief Operating Officer, bringing extensive experience in non-profit management and strategic development to enhance the organization's operational efficiency and impact.
Jennifer Wallace, Jennifer Wallace was promoted to Chief Program Officer, expanding her leadership over CureDuchenne's comprehensive support programs and care initiatives.
Michael Kelly, PhD, Michael Kelly, PhD, was promoted to Chief Scientific Officer, responsible for guiding CureDuchenne's research investment strategy and scientific collaborations.

Technology (Tech Stack) used by CureDuchenne

Discover the tools CureDuchenne uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

CureDuchenne Email Formats and Examples

CureDuchenne likely utilizes a common professional email format. Based on publicly available contact information for leadership (e.g., CEO Debra Miller), the primary format appears to be [first name]@[companydomain].com. Other common non-profit formats could exist, but this is the most evident.

[first]@cureduchenne.org

Format

debra@cureduchenne.org

Example

85%

Success rate

News and media

CureDuchenne Official WebsiteMay 7, 2024

CureDuchenne BioVenture Philanthropy Model Fuels Innovation in Duchenne Muscular Dystrophy Research

CureDuchenne highlighted its successful venture philanthropy model, which has strategically invested over $60 million in promising research projects. This approach has been instrumental in advancing the Duchenne therapeutic pipeline, contributing to multiple FDA-approved treatments and bridging critical funding gaps for early-stage scientific discovery....more

CureDuchenne Official WebsiteFebruary 13, 2024

CureDuchenne Partners with Michael’s Cause to Fund Research into Duchenne Cardiomyopathy

CureDuchenne and Michael's Cause announced a collaborative funding initiative to support Dr. DeWayne Townsend's research at the University of Minnesota. The project aims to explore novel therapeutic strategies for Duchenne cardiomyopathy, a common and life-threatening complication of Duchenne muscular dystrophy....more

CureDuchenne Official WebsiteOctober 17, 2023

CureDuchenne Celebrates 20 Years of Impact in the Fight Against Duchenne Muscular Dystrophy

CureDuchenne commemorated its 20th anniversary, reflecting on two decades of dedicated efforts that have significantly advanced Duchenne research, improved patient care standards, and empowered the global Duchenne community. The organization celebrated its role in the development of multiple FDA-approved therapies....more

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