CureDuchenne is a leading national non-profit organization passionately committed to finding a cure for Duchenne muscular dystrophy, a fatal genetic disease. Founded by parents of a son with Duchenne, the organization focuses on three core pillars: funding groundbreaking research to accelerate the development of effective treatments, improving care for individuals living with Duchenne through education and advocacy, and empowering the Duchenne community with resources and support. They strive to make a tangible difference in the lives of those affected by Duchenne, driving scientific breakthroughs and fostering hope.
Serves as the primary administrative, research coordination, fundraising, and program management center for the organization.
Located in a modern office building in a prominent business district, facilitating accessibility for partners and collaborators. The focus is on a functional and collaborative workspace.
A mission-driven, passionate, and collaborative environment. Employees are dedicated to the cause of finding a cure for Duchenne, fostering a sense of urgency and commitment. The culture emphasizes teamwork, innovation in research funding, and strong community engagement.
The headquarters is vital for strategic planning, managing multi-million dollar research investments, coordinating with scientists and clinicians globally, and leading advocacy efforts to impact Duchenne care and policy.
While headquartered in the USA, CureDuchenne has a significant global impact. It funds and collaborates with researchers, institutions, and pharmaceutical companies worldwide to advance Duchenne treatments. The organization supports international patient advocacy efforts, shares best practices in care globally, and works to ensure that breakthroughs reach the Duchenne community across different countries. Their presence is defined by strategic partnerships and program reach rather than numerous physical international offices.
1400 Newport Center Drive, Suite 300
Newport Beach
CA
USA
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As of April 2025, CureDuchenne' leadership includes:
CureDuchenne has been backed by several prominent investors over the years, including:
CureDuchenne solidified its executive team with key appointments and promotions primarily in early 2023, establishing a strong C-suite. No major C-suite departures have been publicly announced in the immediate last 12-18 months, indicating team stability and focus on its mission.
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CureDuchenne likely utilizes a common professional email format. Based on publicly available contact information for leadership (e.g., CEO Debra Miller), the primary format appears to be [first name]@[companydomain].com. Other common non-profit formats could exist, but this is the most evident.
[first]@cureduchenne.org
Format
debra@cureduchenne.org
Example
85%
Success rate
CureDuchenne Official Website • May 7, 2024
CureDuchenne highlighted its successful venture philanthropy model, which has strategically invested over $60 million in promising research projects. This approach has been instrumental in advancing the Duchenne therapeutic pipeline, contributing to multiple FDA-approved treatments and bridging critical funding gaps for early-stage scientific discovery....more
CureDuchenne Official Website • February 13, 2024
CureDuchenne and Michael's Cause announced a collaborative funding initiative to support Dr. DeWayne Townsend's research at the University of Minnesota. The project aims to explore novel therapeutic strategies for Duchenne cardiomyopathy, a common and life-threatening complication of Duchenne muscular dystrophy....more
CureDuchenne Official Website • October 17, 2023
CureDuchenne commemorated its 20th anniversary, reflecting on two decades of dedicated efforts that have significantly advanced Duchenne research, improved patient care standards, and empowered the global Duchenne community. The organization celebrated its role in the development of multiple FDA-approved therapies....more
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