The Children's Tumor Foundation (CTF) is a highly-rated 501(c)(3) non-profit medical foundation dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis (NF), a group of genetic disorders that cause tumors to grow on nerves throughout the body. CTF's mission is to drive research towards a cure, expand knowledge of NF, and advance care for the NF community. They achieve this by funding innovative research, promoting the development of effective therapies, raising public awareness, and providing comprehensive patient and family support.
Serves as the main administrative and operational center, overseeing global research funding, patient advocacy programs, awareness campaigns, and strategic partnerships.
Located in a modern office building in Manhattan's Financial District, providing a professional environment for staff and visitors. The focus is on functional and collaborative workspace rather than specific architectural highlights.
The work culture is mission-driven, characterized by passionate and dedicated professionals committed to the cause of ending NF. It fosters collaboration, innovation, and a strong sense of community among employees, researchers, patients, and volunteers.
The New York City headquarters provides CTF with access to leading medical institutions, research facilities, corporate partners, and a diverse talent pool, enhancing its ability to drive its mission forward on a national and international scale.
The Children's Tumor Foundation has a significant global reach, funding research projects and collaborating with institutions and patient organizations worldwide. Beyond its US headquarters, CTF maintains a European office in Brussels (CTF Europe) and actively engages in international consortia and initiatives to accelerate NF research, improve patient care globally, and raise awareness across different countries and cultures.
120 Wall Street, 16th Floor
New York
NY
USA
Address: Rue d'Egmont 11, 1000 Brussels, Belgium
To expand CTF's mission within Europe, fostering partnerships with European researchers, clinicians, and patient organizations, and to build a strong NF community presence in the region.
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As of April 2025, Children's Tumor Foundation' leadership includes:
Children's Tumor Foundation has been backed by several prominent investors over the years, including:
Based on publicly available information, there have been no major executive-level hires or departures announced by the Children's Tumor Foundation in the last 12 months, indicating stability within the core leadership team.
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The Children's Tumor Foundation commonly uses the email format [first_initial][last_name]@ctf.org for its staff. For general inquiries, it's best to use the contact forms or general email addresses provided on their official website to ensure your message reaches the appropriate department.
[first_initial][last]@ctf.org
Format
abakker@ctf.org
Example
80%
Success rate
Children's Tumor Foundation • May 21, 2024
The first Shine a Light NF Walk of the 2024 season, held in Naperville, Illinois, successfully raised over $125,000. These funds will support vital neurofibromatosis research and awareness initiatives driven by the Children's Tumor Foundation....more
Children's Tumor Foundation • May 15, 2024
The Children’s Tumor Foundation (CTF) has allocated over $2.2 million in new research awards. This funding will support 11 innovative projects focused on advancing treatments and understanding of neurofibromatosis (NF), including NF1, NF2, and schwannomatosis....more
Children's Tumor Foundation • April 26, 2024
In collaboration with NF North Central, the Children's Tumor Foundation hosted an NF Forum in Minneapolis. The event brought together patients, families, clinicians, and researchers to share knowledge, foster community, and discuss advancements in neurofibromatosis care and research....more
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