Beyond Batten Disease Foundation
Beyond Batten Disease Foundation's Overview
Beyond Batten Disease Foundation (BBDF) is a leading global non-profit organization established in 2008, passionately committed to eradicating juvenile Batten disease. BBDF focuses on funding and accelerating innovative research to discover treatments and ultimately find a cure for this rare, fatal, inherited disorder of the nervous system that primarily affects children. They work to raise awareness, support affected families, and foster collaboration within the scientific community to bring hope and tangible progress against Batten disease.
Where is Beyond Batten Disease Foundation's Headquarters?
HQ Function
Serves as the primary administrative and operational center, coordinating research grant programs, fundraising initiatives, and awareness campaigns for Batten disease.
Notable Features:
Standard office facilities designed to support the foundation's mission-driven team and operational needs.
Work Culture:
A dedicated, mission-focused, and collaborative environment driven by the urgency to find treatments and a cure for Batten disease. The team is passionate about making a tangible impact on the lives of affected children and their families.
HQ Significance:
The headquarters is crucial for centralizing the foundation's efforts, managing global research collaborations, and engaging with donors, researchers, and the Batten community.
Values Reflected in HQ: The operational efficiency and focused environment of the headquarters reflect the foundation's commitment to urgency, hope, scientific rigor, and stewardship of donor funds.
Location:
While headquartered in Austin, Texas, Beyond Batten Disease Foundation supports and funds research projects and collaborates with scientists and institutions globally. Their impact is international, aiming to accelerate the discovery of treatments and cures for Batten disease for affected children worldwide. They engage with a global community of researchers, clinicians, and families.
Street Address:
3305 Northland Drive, Suite 402
City:
Austin
State/Province:
TX
Country:
USA
Beyond Batten Disease Foundation's Global Presence
Buying Intent Signals for Beyond Batten Disease Foundation
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Executive Team of Beyond Batten Disease Foundation
As of April 2025, Beyond Batten Disease Foundation' leadership includes:
Investors of Beyond Batten Disease Foundation
Beyond Batten Disease Foundation has been backed by several prominent investors over the years, including:
Executive New Hires/Exits in the Last 12 Months
No major publicly announced executive hires or exits have been identified for Beyond Batten Disease Foundation in the last 12 months (approximately May 2023 - May 2024). The foundation maintains a stable leadership team focused on its mission.
Technology (Tech Stack) used by Beyond Batten Disease Foundation
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Beyond Batten Disease Foundation Email Formats and Examples
Beyond Batten Disease Foundation primarily uses its website contact form for inquiries. For direct staff communication, emails likely follow the format [first_initial][last_name]@beyondbatten.org. Using the official contact channels on their website is recommended for initial contact.
[first_initial][last]@beyondbatten.org
Format
astrehlow@beyondbatten.org
Example
75%
Success rate
News and media
Beyond Batten Disease Foundation • April 16, 2024
Beyond Batten Disease Foundation Announces Research Grant Award to Dr. Pravin Pahlevanpour at Boston Children’s Hospital
BBDF has awarded a research grant to Pravin Pahlevanpour, PhD, of Boston Children’s Hospital to study how the CLN3 protein, which is defective in juvenile Batten disease, functions and how its absence leads to the disease....more
KELOLAND.com • January 24, 2024
Beyond Batten Disease Foundation supports Sanford Health research with $350K grant for Batten disease study
Sanford Health's research into CLN3 Batten disease, led by Dr. David Pearce, received a $350,000 grant from the Beyond Batten Disease Foundation to advance understanding and treatment of the rare genetic disorder....more
Beyond Batten Disease Foundation • January 23, 2024
Beyond Batten Disease Foundation Awards $350,000 Grant To Dr. David Pearce For Batten Disease Research
BBDF awarded a $350,000 grant to David Pearce, PhD, President of Innovation and Research, Sanford Health, to support research on CLN3 Batten disease, focusing on understanding disease mechanisms and potential therapeutic targets....more
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