A Foundation Building Strength (AFBS) is a patient-focused, non-profit organization committed to advancing research and therapies for Nemaline Myopathy (NM), a group of rare congenital neuromuscular disorders. Founded in 2008 by parents of a child with NM, AFBS strives to build a strong community for affected families, provide resources and support, fund promising scientific research globally, and advocate for those living with Nemaline Myopathy. Their ultimate goal is to find effective treatments and a cure for NM, improving the quality of life and strength of individuals worldwide.
Serves as the main administrative hub for the foundation, coordinating fundraising, research grant distribution, family support programs, awareness campaigns, and communications.
As the headquarters is a P.O. Box, physical architectural features are not applicable. The 'headquarters' primarily functions as a centralized point for mail, official correspondence, and virtual operations management.
The work culture at A Foundation Building Strength is driven by a deep passion for their mission, empathy, and a collaborative spirit. It heavily relies on dedicated volunteers and a small core team focused on maximizing impact for the Nemaline Myopathy community.
The headquarters, though a mailing address, is significant as the central operational node for AFBS's global efforts in research funding, patient advocacy, and community building for Nemaline Myopathy.
A Foundation Building Strength has a significant global impact despite its centralized administration. It supports and funds Nemaline Myopathy research projects in various countries, connects with and provides resources to families and medical professionals worldwide, and participates in international conferences and awareness initiatives. Their community and reach extend globally, united by the common goal of combating Nemaline Myopathy.
P.O. Box 7000 - 527
Redondo Beach
CA
USA
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As of April 2025, A Foundation Building Strength' leadership includes:
A Foundation Building Strength has been backed by several prominent investors over the years, including:
There have been no major publicly announced executive hires or exits at A Foundation Building Strength in the last 12 months. The foundation's leadership team appears stable, continuing its focus on its mission.
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For general inquiries, A Foundation Building Strength can be reliably reached via their main contact email. While specific individual email patterns may vary, common formats for organizations include [first].[last]@domain.com or [first_initial][last]@domain.com. For official communication, using the provided general contact email is recommended.
[first].[last]@afbs.org or [first_initial][last]@afbs.org
Format
info@afbs.org
Example
95%
Success rate
afbs.org • June 12, 2023
A Foundation Building Strength (AFBS) announced $100,000 in funding for two new research grants aimed at accelerating the development of therapies for Nemaline Myopathy (NM). These grants support innovative projects focused on understanding disease mechanisms and identifying potential treatments....more
afbs.org • May 2, 2023
A Foundation Building Strength honored Dr. James Dowling with the 2023 Harrison Award for his significant contributions to Nemaline Myopathy research, particularly in advancing therapeutic strategies....more
afbs.org • September 20, 2023
Representatives from A Foundation Building Strength attended and presented at the Nemaline Myopathy Conference (NMCON2023) in Nashville, TN, sharing updates on funded research, community initiatives, and collaborating with families, clinicians, and researchers....more
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