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A Foundation Building Strength's Overview

Total employees15
HeadquartersRedondo Beach
Founded2008

A Foundation Building Strength (AFBS) is a patient-focused, non-profit organization committed to advancing research and therapies for Nemaline Myopathy (NM), a group of rare congenital neuromuscular disorders. Founded in 2008 by parents of a child with NM, AFBS strives to build a strong community for affected families, provide resources and support, fund promising scientific research globally, and advocate for those living with Nemaline Myopathy. Their ultimate goal is to find effective treatments and a cure for NM, improving the quality of life and strength of individuals worldwide.

Where is A Foundation Building Strength's Headquarters?

HQ Function

Serves as the main administrative hub for the foundation, coordinating fundraising, research grant distribution, family support programs, awareness campaigns, and communications.

Notable Features:

As the headquarters is a P.O. Box, physical architectural features are not applicable. The 'headquarters' primarily functions as a centralized point for mail, official correspondence, and virtual operations management.

Work Culture:

The work culture at A Foundation Building Strength is driven by a deep passion for their mission, empathy, and a collaborative spirit. It heavily relies on dedicated volunteers and a small core team focused on maximizing impact for the Nemaline Myopathy community.

HQ Significance:

The headquarters, though a mailing address, is significant as the central operational node for AFBS's global efforts in research funding, patient advocacy, and community building for Nemaline Myopathy.

Values Reflected in HQ: The use of a P.O. Box reflects values of efficiency, resourcefulness, and a focus on channeling funds directly towards research and support programs rather than extensive physical infrastructure.

Location:

A Foundation Building Strength has a significant global impact despite its centralized administration. It supports and funds Nemaline Myopathy research projects in various countries, connects with and provides resources to families and medical professionals worldwide, and participates in international conferences and awareness initiatives. Their community and reach extend globally, united by the common goal of combating Nemaline Myopathy.

Street Address:

P.O. Box 7000 - 527

City:

Redondo Beach

State/Province:

CA

Country:

USA

A Foundation Building Strength's Global Presence

Buying Intent Signals for A Foundation Building Strength

Highperformr Signals uncover buying intent and give you clear insights to target the right accounts at the right time — helping your sales, marketing, and GTM teams close more deals, faster.

Notable news
Hiring actively
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
Corporate Finance
*Example signal, not calculated in real time

Executive Team of A Foundation Building Strength

As of April 2025, A Foundation Building Strength' leadership includes:

Sarah Foye - President & Co-founder
Jonathan Foye - Treasurer & Co-founder
Marc Guillet - Vice President
Melissa Figueroa - Secretary

Investors of A Foundation Building Strength

A Foundation Building Strength has been backed by several prominent investors over the years, including:

Individual Donations
Corporate Sponsorships
Peer-to-Peer Fundraising Campaigns
Grants from other Foundations
Family-organized Fundraising Events

Executive New Hires/Exits in the Last 12 Months

Hire0
Exits0

There have been no major publicly announced executive hires or exits at A Foundation Building Strength in the last 12 months. The foundation's leadership team appears stable, continuing its focus on its mission.

Technology (Tech Stack) used by A Foundation Building Strength

Discover the tools A Foundation Building Strength uses. Highperformr reveals the technologies powering your target accounts — helping your sales, marketing, and GTM teams prioritize smarter and close faster.

A Foundation Building Strength Email Formats and Examples

For general inquiries, A Foundation Building Strength can be reliably reached via their main contact email. While specific individual email patterns may vary, common formats for organizations include [first].[last]@domain.com or [first_initial][last]@domain.com. For official communication, using the provided general contact email is recommended.

[first].[last]@afbs.org or [first_initial][last]@afbs.org

Format

info@afbs.org

Example

95%

Success rate

News and media

afbs.orgJune 12, 2023

AFBS Funds Two New Research Grants Advancing Therapy Development for Nemaline Myopathy

A Foundation Building Strength (AFBS) announced $100,000 in funding for two new research grants aimed at accelerating the development of therapies for Nemaline Myopathy (NM). These grants support innovative projects focused on understanding disease mechanisms and identifying potential treatments....more

afbs.orgMay 2, 2023

AFBS Awards 2023 Harrison Award for Excellence in Nemaline Myopathy Research

A Foundation Building Strength honored Dr. James Dowling with the 2023 Harrison Award for his significant contributions to Nemaline Myopathy research, particularly in advancing therapeutic strategies....more

afbs.orgSeptember 20, 2023

AFBS Attends and Presents at NMCON2023 in Nashville

Representatives from A Foundation Building Strength attended and presented at the Nemaline Myopathy Conference (NMCON2023) in Nashville, TN, sharing updates on funded research, community initiatives, and collaborating with families, clinicians, and researchers....more

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